We want to give a huge shout out to everyone for their love so far on our GATA2 Deficiency journey!
Thanks to your support, last week Amri was able to select a wig. Her order is currently being processed!
I hope you enjoy this video of Amri at her wig consultation. :) Music: "Gentle Ways" from Samsung Video Editor
<3 <3 <3
She was very nervous about chemotherapy, and knowing we have this part taken care of is quite a relief. Last week's blood draw revealed that her numbers have inexplicably gone up a little- still not in the normal range, but better than they were. She'll continue to be monitored every 3-4 weeks.
We have soft dates for the fertility preservation trip- Amri and I will head to the National Institutes of Health (Maryland) the last week of September and be gone for about 2 weeks. They're still sorting all the details out- but that's the current plan.
After fertility preservation is complete, they'll select a date for her bone marrow transplant and start "interviewing" donors (from the existing BeTheMatch registry). They have a short list of donors for her already, but they have to make sure the candidates are still serious about it and are in optimal health.
If you'd like to share our GoFundMe link, please do- just remember to add a sentence or two about how you know us. That part is really important. https://www.gofundme.com/f/our-gata2-deficiency-journey
We really, truly appreciate all the love and support we have received. Every message lets Michael and Amri know that someone out there is thinking of them, and I know it has really lifted her spirits.
Thank you so much! -the Carrascos
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#GATA2 #GATA2Deficiency #ourGATA2deficiencyjourney #DaddyDaughter #raredisorder #rarediseases
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